FAQ2025-10-28T12:02:53+02:00

FAQ

Can patients apply directly for expanded access?2025-10-29T17:17:24+02:00

No, patients cannot apply directly. A licensed physician must apply on their behalf for an expanded access.

A patient with a serious or life-threatening disease or condition for which there is no comparable or satisfactory alternative treatment should discuss expanded access with their physician. It is important to note that individual patients are NOT able to apply for expanded access themselves.

How do EAPs benefit pharmaceutical companies?2025-10-29T12:57:53+02:00

EAPs can provide real-world data, expose physicians to new drugs, and assist in regulatory approval processes.

Is there an FDA in France?2025-10-29T18:22:25+02:00

France does not have an FDA. The equivalent authority of the FDA in France is the ANSM (Agence nationale de sécurité du médicament et des produits de santé), which regulates medicines and health products.

Sources

What is an Expanded Access Program?2025-10-29T17:41:39+02:00

An Expanded Access Program (EAP) — also known as Compassionate Use — is the United States regulatory mechanism that allows patients with serious or life-threatening diseases to access an investigational medicine outside of clinical trials, when:

  • No satisfactory treatment alternatives exist, and
  • The patient is not eligible to participate in a clinical trial.

EAPs address urgent unmet medical needs while maintaining oversight on safety and data collection. They are not substitutes for clinical trials, but operate in parallel to provide treatment options for patients in critical conditions.

 

Key Features of Expanded Access Programs (United States)

  • Purpose: Provide access to potentially life-saving therapies before FDA approval.
  • Eligibility: Serious or rare diseases, no alternatives, and no trial eligibility.
  • Regulator: FDA, with specific provisions under Expanded Access rules and the “Right to Try” pathway.
  • Forms of Access:
    • Individual/named patient access
    • Cohort/group access (company-led programs)
  • Data obligations: Safety data must be collected and reported; limited efficacy data may also be gathered.
  • Pricing: Cost-recovery pricing allowed under FDA rules.

 

Professional Relevance

  • Enables early patient access to innovative therapies.
  • Generates real-world safety/efficacy insights that may complement clinical trial data.
  • Serves as a bridge to market authorization and reimbursement decisions.

 

Important distinction

 

Sources

  1. EMA – Compassionate Use (Expanded Access in EU)
    https://www.ema.europa.eu/en/human-regulatory/research-development/compassionate-use
  2. European Commission – Regulation (EC) No 726/2004, Article 83
    https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=CELEX:32004R0726
  3. FDA – Expanded Access
    https://www.fda.gov/news-events/public-health-focus/expanded-access
  4. BMJ – Expanded Access in Clinical Practice
    https://www.bmj.com/content/371/bmj.m4050
  5. Orphanet Journal of Rare Diseases – Expanded Access Review
    https://ojrd.biomedcentral.com/articles/10.1186/s13023-017-0705-y
What is AP1 in France?2025-10-29T17:36:20+02:00

AP1 (Accès Précoce 1) is the pre-marketing authorization pathway under France’s Early Access Program (AAP). It allows innovative medicines without marketing authorization (MAA) yet to be used for serious, rare, or disabling conditions when no satisfactory alternative exists within a cohort framework.

Key takeaways – AP1 (pre-MAA Early Access)

  • Purpose: Enables early patient access to innovative therapies still awaiting MAA.
  • Mechanism: As part of the broader AAP framework (since July 2021), AP1 is solely for products that do not yet have MAA, unlike AP2 which applies post-MAA.
  • Conditions: Must fulfill all the following criteria:
    1. Presumed favorable benefit‑risk profile (i.e. Ph2/3 results)
    2. Treatment for serious, rare, or disabling disease
    3. No appropriate alternative available
    4. Treatment cannot be delayed
    5. Presumed innovation relative to clinically relevant comparators

Sources

What is AP2 in France?2025-10-29T17:34:10+02:00

AP2 is part of France’s Early Access Program (AAP). It applies to medicines that already have marketing authorization (MAA) but are still awaiting reimbursement approval and/or completion of final price negotiations. It ensures patients within a cohort framework can access the treatment in the meantime, with obligations for real-world data collection and temporary pricing rules.

What is the difference between a clinical trial and an expanded access program?2025-10-29T17:30:44+02:00

A clinical trial is a controlled research study designed to evaluate a medicine’s efficacy and safety, following strict protocols and inclusion criteria.

An Expanded Access Program (EAP), also called Early Access or Compassionate Use, allows patients who are not eligible for a trial and who have serious or life-threatening conditions without alternatives to access an investigational medicine outside the trial setting.

Clinical Trial vs Expanded Access

Aspect Clinical Trial Expanded Access Program (EAP)
Primary Purpose Generate scientific evidence on efficacy/safety for regulatory approval Provide treatment to patients with no alternatives
Regulator oversight Approved & monitored by regulatory authorities & ethics committees Authorized by regulators (FDA, EMA, national agencies) with less strict protocols
Participants Patients meeting strict inclusion/exclusion criteria Patients not eligible for trials but with urgent medical need
Design Randomized, controlled, blinded when possible Non-randomized, no control group
Data collection Comprehensive (efficacy, safety, endpoints) Limited – mainly safety and real-world use
Patient cost Usually free; sponsored by manufacturer Often free or reimbursed (EU), or cost-recovery allowed (US)
Goal Regulatory approval & scientific validation Patient access + supportive safety data

Key Takeaway

  • Clinical trials = research → generate data for approval.
  • Expanded Access = treatment → provide access for patients outside trials.

Sources

  1. EMA – Clinical Trials
    https://www.ema.europa.eu/en/human-regulatory/research-development/clinical-trials
  2. EMA – Compassionate Use (EAP in EU)
    https://www.ema.europa.eu/en/human-regulatory/research-development/compassionate-use
  3. FDA – Clinical Trials vs Expanded Access
    https://www.fda.gov/news-events/public-health-focus/expanded-access
  4. BMJ – Expanded Access in Clinical Practice
    https://www.bmj.com/content/371/bmj.m4050
What is the difference between AP1 and AP2 in France?2025-10-29T17:32:29+02:00

Differences between AP1 and AP2 in France:

  • AP1: Early Access before marketing authorization (MAA) → allows use of an innovative medicine still under regulatory review.
  • AP2: Early Access after marketing authorization (MAA) but are still awaiting reimbursement approval and/or completion of final price negotiations  → ensures patient access during the pricing/HTA process.

Both require: serious/rare/disabling disease, no alternative, urgent need, strong presumption of efficacy/safety, and real-world data collection (PUT-RD).

What is the difference between the ATU and AAP programs in France?2025-10-29T17:55:38+02:00

The ATU (Temporary Authorization for Use) was the former French framework (in place until July 2021) that allowed early access to medicines. It has been replaced by the AAP (Early Access Authorization) and AAC (Compassionate Access Authorization), which harmonizes procedures, strengthens evidence requirements, and clarifies pricing rules.

Key Differences ATU vs AAP vs AAC

Aspect ATU (until June 2021) AAP (since July 2021) AAC (Compassionate Access Authorization)
Legal basis ATU = Autorisation Temporaire d’Utilisation AAP = Autorisation d’Accès Précoce AAC = Autorisation d’Accès Compassionnel
Regulator Exclusively ANSM ANSM (efficacy & safety) + HAS (final decision & assessment) Exclusively ANSM
Types Nominative ATU (one patient) and Cohort ATU (group) Unified single framework (no nominative/cohort distinction) Always nominative, for individual patients
Eligibility Serious/rare disease, no alternative, positive benefit-risk, ongoing clinical data Serious/rare/disabling disease, no alternative, treatment cannot be delayed, strong presumption of efficacy & safety, innovation required Serious/rare disease, no alternative, either no presumption of innovation required, where product is not intended for commercial development or before an AAP
Duration Temporary, renewable 1 year, renewable Case-by-case, renewable if no commercialization plan, or 12–18 months when used as a pre-AAP program
Evidence obligations Limited, heterogeneous data collection Mandatory PUT-RD (protocol for therapeutic use & data collection) → structured RWE Potentially PUT-SP (Protocol of therapeutic use & patient follow-up), otherwise mainly pharmacovigilance reporting
Pricing Manufacturer set free price, clawback rules unclear Manufacturer free price; fully reimbursed; clawback mechanism if final negotiated price < AAP price Manufacturer free price; fully reimbursed; clawback mechanism if final negotiated price < AAP price
Process Initiated by physician (nominative) or company (cohort) Centralized application via SESAME platform, evaluation ≤90 days Physician request via e-Saturne portal, authorization by ANSM
Transition Ended July 2021 Successor framework in force since July 2021 Still in force (parallel system to AAP)

 

Why the Change?

  • To simplify and unify early access procedures.
  • To align clinical access with European best practices.
  • To improve data collection (RWE) for pricing/reimbursement negotiations.
  • To provide greater transparency and predictability for manufacturers and healthcare providers.

 

Sources

  1. HAS – Reform of Early Access & Compassionate Use (AAP replacing ATU, July 2021)
  2. HAS – AAP Evaluation Doctrine
  3. HAS – Two-year assessment of AAP
  4. ANSM – Transition from ATU to AAP
  5. ANSM – 2020 Annual Report – ATU activity before reform
What is the Early Access Authorization (AAP) in France?2025-10-30T15:58:06+02:00

AAP is a French program allowing access to innovative medicines before marketing authorization, under specific conditions, with decisions made by HAS following ANSM’s opinion. (Haute Autorité de Santé). 

Discover more about AAP : full definition here.

What is the Early Access Program (AAP) in France?2025-10-29T18:07:07+02:00

The Early Access Authorization (AAP) is a regulatory framework that enables patients with serious, rare, or disabling diseases to access innovative medicines before marketing authorization (MAA) or reimbursement. It addresses unmet medical needs when no satisfactory alternative exists.

 

Key takeaways

  • Regulators:
    • ANSM assesses presumed efficacy and safety.
    • HAS decides on granting the authorization.
  • Eligibility Criteria:
    • Serious, rare, or disabling condition.
    • No appropriate alternative.
    • Treatment cannot be delayed.
    • Strong presumption of efficacy/safety.
    • Demonstrated innovation.
  • Duration & Obligations:
    • Granted for 1 year, renewable.
    • Mandatory Protocol of Therapeutic Use (PUT-RD) to collect real-world data.
  • Market & Access Impact:
    • Manufacturers set a free price during AAP.
    • A clawback mechanism applies after reimbursement negotiations including yearly provisions.
    • Provides early patient access and generates real-world evidence (RWE) for pricing and reimbursement dossiers.
  • Performance:
    • Since July 2021: >100,000 patients treated.
    • Approval rate around 78%.
    • Median evaluation time: ~78 days (below the 90-day limit).

 

Official Sources

  1. HAS – What you need to know about Early Access
  2. HAS – Two-year assessment of the scheme
  3. HAS – Evaluation doctrine
  4. ANSM – Early Access role
  5. ANSM – 2023 Annual Report
What is the Expanded Access Program (EAP) in Europe?2025-10-29T17:45:58+02:00

The Expanded Access Program (EAP), sometimes called Compassionate Use Program (CUP) in Europe, is a regulatory mechanism that allows patients with serious or life-threatening diseases to access investigational medicines before marketing authorization (MAA) when no satisfactory alternatives exist.

It operates under a European framework (EMA guidance, Article 83 of Regulation (EC) No 726/2004), but implementation is national, meaning each EU member state manages access according to its own procedures.

 

Key Takeaways

  • Europe has a common legal basis (Article 83), but implementation is decentralized to each member state.
  • EMA provides recommendations for multinational compassionate use, but national agencies grant access.
  • Programs differ: France (AP1/AP2 via ANSM), Germany (Compassionate use via BfArM), Finland (Special Permit), Sweden/Denmark/Spain/Italy (Compassionate Use), Portugal (Exceptional Use Authorization), UK (EAMS, post-Brexit)…
  • Used primarily as a bridge for patients before full market authorization.

 

Sources

  1. EMA – Compassionate use (legal basis, Article 83)
    https://www.ema.europa.eu/en/human-regulatory/research-development/compassionate-use
  2. European Commission – Regulation (EC) No 726/2004 (Article 83)
    https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=CELEX:32004R0726
  3. EMA – Guidance for companies on compassionate use
    https://www.ema.europa.eu/en/documents/regulatory-procedural-guideline/guideline-compassionate-use_en.pdf
  4. Scientific review – Expanded access in Europe (BMJ / Orphanet)
What is the regulatory body of pharma in France?2025-10-29T17:26:42+02:00

The main regulatory authority for pharmaceuticals in France is the ANSM (Agence nationale de sécurité du médicament et des produits de santé). It oversees drug approval, safety, pharmacovigilance, and market supervision. For health technology assessment and reimbursement decisions, the competent body is the HAS (Haute Autorité de Santé).

Pricing negotiations are handled by the CEPS (Comité économique des produits de santé).

The URSSAF oversees social security contributions and employer obligations, but it is not directly involved in the regulatory pathway of a medicinal product.

Sources

What is the role of an exploitant in France?2025-10-29T17:28:42+02:00

Role of an “Exploitant” in France: In the French pharmaceutical system, the exploitant is the legal entity responsible for the commercialization and distribution of a medicinal product once it is authorized.

Key Points

  • Regulatory role:
    • Holds the responsibility vis-à-vis ANSM (French Medicines Agency) for the product placed on the French market.
    • Ensures compliance with pharmacovigilance, distribution, sales, advertising rules, financial and regulatory obligations.
  • Operational role:
    • May differ from the MAH (Marketing Authorization Holder) if the MAH is not established in France.
    • The exploitant is the local interface between the manufacturer/MAH, the French authorities and administrative bodies.
  • Legal basis:
    • Defined under French Public Health Code (CSP, Article R.5124-2).

Sources

  1. ANSM – Responsibilities of the Exploitant
    https://ansm.sante.fr/activites/medicaments/exploitants-et-distributeurs
  2. Code de la Santé Publique – Article R.5124-2
    https://www.legifrance.gouv.fr/codes/article_lc/LEGIARTI000006690421
  3. Leem – The role of the Exploitant in France
    https://www.leem.org/
What is the role of HAS in early access programs in France?2025-10-29T17:13:31+02:00
Who grants compassionate use authorizations in France?2025-10-30T15:59:23+02:00

The ANSM (French National Agency for Medicines and Health Products Safety) is responsible for compassionate use authorizations. (Haute Autorité de Santé)

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